Changes in care: considering a care home for a person with dementia

Moving into a care home can be daunting for a person with dementia and their family and friends – but preparing well can make the transition easier. 

Why might a person with dementia need to move into a care home?

People with dementia might need to move into a residential care home for various reasons, such as:  

  • their needs have increased as their dementia has progressed 
  • their condition has deteriorated after a crisis, such as a hospital admission 
  • their family or home carer is no longer able to support them  
  • they require 24-hour supervision 
Choosing a care home

Choosing a care home can feel overwhelming, but finding the right place can provide vital social contact for the person with dementia and improve everyone’s quality of life. 

Try to plan ahead and involve the person with dementia – they may not have the mental capacity to make their own decision, but their views should be considered. 

These steps can help guide your decision-making. 

 

Make a list of potential care homes

You can request a list of local care homes from Social Services or  The Elderly Accommodation Counsel.

Consider what matters to you and the person with dementia

It’s helpful to make a checklist of what to look for when shortlisting and visiting care homes. 

Consider things like: 

  • do the staff make you feel welcome?  
  • do they seem interested in your relative?  
  • what is the accommodation like? 
  • are there activities that your relative would enjoy? 

Age UK has a guide to making a checklist. 

Check the care home’s quality rating

The Care Quality Commission (CQC) is responsible for inspecting and rating care homes. Checking each care home’s  CQC report will show you what they do well – and less well. 

Arrange visits

Visiting a home in person is essential to see how they care for people and gauge whether your family member would be happy there.  

It’s important to phone or email to book a visit to ensure a staff member is available to show you round. You could, however, arrive a little earlier to observe the daily life of the home and get a true feel for it. 

Find out how they care for people with dementia

Whether the home you’re considering is a general care home or specialises in dementia care, it is important to find out how they meet the needs of people with dementia. 

Find out how many carers are trained in dementia care and at what level, and ask to talk to some of the staff who have dementia care experience. 

Also, try to speak to other families who have a relative with dementia in the care home – they can often share valuable insights. 

Prepare for the move

Most care homes will visit your relative at home or in hospital or invite them to visit the home before they move in.  

Ask to speak to the staff member who does this and give them as much information about the person as possible so they can help them settle in.  

You could do this by compiling a record of their life, called a ‘Life Story’ – see Sources of support below for more information. 

You could also consider arranging a short respite stay in the care home first – this can ease the transition, and if things work out, the person may be content to stay long-term. 

On the day of the move

Sometimes, people with dementia may be reluctant to leave their own home or have forgotten the arrangement, so it’s important to try to reduce their anxieties.  

These tips may help. 

  • Think about anything that might cause conflict or distress so you can avoid or minimise it 
  • Ask if a staff member who has met the person can be available when they arrive – a familiar face may be reassuring 
  • Explain that the move is a trial, and that you’ll review things after a settling-in period 
  • Make the person’s room homely, for example with photos, treasured ornaments and a favourite blanket or comforter 
  • Choose the right moment to leave. Discuss this with the staff so they can help if the situation becomes difficult – leaving while the person is distracted with a meal or activity may make it easier 
Supporting the person with dementia following the move

Some people with dementia settle quickly into a care home, while others need longer to adjust – this is different for everyone. 

Some care homes ask families not to visit for the first week or so to enable the person to settle in and prevent them thinking that you have come to take them home. However, for other people, visiting frequently may be the best approach. 

Encourage the person to get to know other residents – for example, by spending time in communal areas – and join in activities.  

Keep in mind that this is a partnership between your family and the care home. Families are vital in helping staff build a care plan for the person and giving them advice on how to meet their needs. 

Your emotions

It is natural to find things difficult when your family member moves into a care home. 

You may feel you have ‘lost’ the person, let them down or given up on them. You may also feel guilty if you’re relieved about being released from your caring role. 

And you might feel lonely and isolated without the person around, and if regular contact with their health and social care professionals has stopped. 

These feelings are normal, so it’s important that you have support from family, friends and professionals at this time.  

Try to resume activities and clubs that you enjoyed before you were a carer, or try new ones where you can meet new friends. 

Keep in mind that although you are no longer the person’s main carer, your relationship with them is just as important – and being relieved of some of your caring responsibilities may make your time together more enjoyable and less stressful. 

Concerns about a care home

Sometimes, concerns may arise about how the person with dementia is being cared for. If so, you could follow this process: 

  • First, speak to your relative’s keyworker – often, this is enough to resolve the problem 
  • If you still have concerns, contact the care home manager and raise the issues with them 
  • If you are still dissatisfied and the person’s care is funded by your local council, you should contact the council for further advice 
  • If the person’s care is self-funded, you can escalate the complaint to the Local Government and Social Care Ombudsman 

If you believe there is a safety risk, abuse, harm or neglect, you can raise this with the Care Quality Commission (in England), Care Social Services Inspectorate Wales,  Care Inspectorate (in Scotland) or  Regulation Quality Improvement Authority  (in Northern Ireland). 

These organisations do not investigate individual complaints, but if there are safeguarding issues, they may refer these to the local council or police for further investigation. 

Sources of support

To speak to a dementia specialist Admiral Nurse about moving into a care home or any other aspect of dementia, please call our free Helpline on 0800 888 6678 (Monday-Friday 9am-9pm, Saturday and Sunday 9am-9pm, every day except 25th December) or email helpline@dementiauk.org. 

If you would prefer to pre-book a phone or video call with an Admiral Nurse, please visit dementiauk.org/get-support/closer-to-home/ 

Dementia UK information that you might find helpful: 

Capacity and decision-making
dementiauk.org/get-support/diagnosis-and-next-steps/changes-in-care/capacity-decision-making/

Creating a Life Story
dementiauk.org/get-support/maintaining-health-in-dementia/creating-a-life-story/

Looking after yourself as a carer
dementiauk.org/get-support/looking-after-yourself-as-a-carer/looking-after-yourself-when-you-care-for-someone-with-dementia/ 

Coping with feelings of guilt
dementiauk.org/get-support/looking-after-yourself-as-a-carer/coping-with-feelings-of-guilt/

Advance Care Planning
dementiauk.org/get-support/legal-and-financial-information/advance-care-planning/

Guide to NHS continuing healthcare (CHC) funding
dementiauk.org/get-support/legal-and-financial-information/guide-to-continuing-healthcare-funding/

Other resources:  

Age UK
ageuk.org.uk 

Residents and Relatives Association – for older people needing care and their relatives
relres.org  

Find your local council
gov.uk/find-local-council

Carehome.co.uk – care home reviews website
carehome.co.uk  

Which? Financing later-life care
which.co.uk/money/pensions-and-retirement/financing-later-life-care 

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Publication date: January 2020
Review date: January 2022