This can lead to delays in getting assessed and diagnosed, sometimes for years – time in which they could have received treatment and support.
It may also mean that they don’t seek help for other treatable conditions that have similar symptoms – like certain infections, vitamin or hormone deficiencies, mental health issues and stress – because they are afraid they will be diagnosed with dementia.
Some people with dementia and their families feel ashamed of the diagnosis because of the potential for stigma and discrimination. They may end up withdrawing from socialising and their usual activities, which can contribute to loneliness and isolation.
Sometimes, family and friends behave differently towards the person with dementia. This may be due to fear, negative stereotypes, or worries about saying or doing the wrong thing.
For example, they may become overprotective of the person, believing that some things they can still do may now be too risky. However, there’s plenty of evidence to suggest otherwise – and that continuing to be as independent as possible and do the things they enjoy is beneficial for the person’s wellbeing.