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Young onset dementia

Information and resources about young onset dementia, where symptoms develop before the age of 65.

Receiving a diagnosis of dementia aged under 65 is relatively rare and information about young onset dementia and age-appropriate support can be hard for people to find.

Younger people experience different symptoms to older people and the impact on their lives is likely to be significantly greater. Most people affected by the condition know no one else in their situation, so may feel very isolated.

What is young onset dementia?

What is young onset dementia? What differences are there to late onset dementia? How do young onset dementia symptoms develop?

middle aged couple embrace. The wife looks concerned.

Young onset dementia: getting a diagnosis

Information about young onset dementia symptoms, how to get a diagnosis and why getting one matters, as well as treatments and support.

Young onset dementia: next steps after a diagnosis

What to do next after a diagnosis of young onset dementia and how to address matters that may help make life more manageable.

Middle aged man walking down a path near a river

Young onset dementia: different symptoms

Information and advice about the different symptoms experienced by younger people who are living with dementia.

Young onset dementia: facts and figures

Facts and figures about young onset dementia including diagnosis, prevalence, common types and the impact for younger people.

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Employment and young onset dementia

A diagnosis of young onset dementia often affects the person’s ability to work. Read how dementia may affect employment and how to manage the changes.

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Useful publications about young onset dementia

A range of young onset dementia related publications which we hope you will find informative and interesting.

Finance and young onset dementia

A diagnosis of young onset dementia may impact your finances, this page shares information and advice around financial and legal matters to consider.

Living with young onset dementia

Find out more about life with young onset dementia and how to adapt after your diagnosis.

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Perimenopause and menopause

The symptoms of perimenopause and menopause have similarities with dementia symptoms. How do you recognise which is which?

three women sitting together and talking

Find young onset dementia support groups and services

A searchable database of young onset dementia groups and services across the UK. Find a service where you live.

Supporting children and adolescents when a parent has young onset dementia

Information and advice around supporting children and adolescents when a parent has young onset dementia.

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Choosing a care home

Information and advice around choosing a care home for a younger person living with dementia.

Personal stories

Inspiring personal stories of people living with young onset dementia, their partners, siblings, children and friends.

Young Dementia Network

An online community of people living with young onset dementia, their family and friends, and professional