NHS continuing healthcare funding explained
To get NHS continuing healthcare funding, people must apply and have their needs assessed.
Dementia is a complex, challenging and progressive condition that affects every individual differently. This means that expert guidance from a dementia specialist is essential throughout the assessment process to make sure that the needs of people with dementia are effectively considered.
However, this doesn’t routinely happen. People’s unique needs are often misunderstood, underestimated and incorrectly assessed – and unless the process is reformed, many families will miss out on the funding they urgently need.
We want NHS England to review the CHC process so that it better recognises the cognitive, behavioural and care needs of people living with dementia.
Find out more about what CHC is, whether you might be eligible and how to apply.
How is this affecting people?
Right now, many people with dementia in England who may be eligible for NHS continuing healthcare funding are missing out. This can lead to increased – and often unmanageable – caring responsibilities for family members, and serious financial worries for those who are left to foot the cost of care themselves.
Families have told us that they feel frustrated and demoralised by a system that appears to work against them by failing to recognise the complex health needs of people with dementia.
According to new Ipsos UK research commissioned by Dementia UK, nearly a quarter of those surveyed (24%) whose friend or loved one had tried to access CHC funding disagreed that the system was fit for purpose – whether they had been successful or not. In addition, just 14% of those surveyed were aware of NHS CHC at all.*
This is unacceptable. Discover their stories below.