We started the application back in October 2019 and the Decision Support Tool (DST) meeting was eventually held in April 2021. There was no one in charge so the initial checklist had to be repeated three times as it was either lost or kept on hold for so long that it expired. I kept chasing but nobody would ring me back.
A number of professionals offered to write statements, including the Parkinson’s nurse, the Speech and Language Team, the dietician and the Frailty Support Team. However, none of these professionals were present at the DST meeting. It was just me, our new Social Worker – who had little knowledge of CHC – and the CHC assessor. Despite the National Framework for CHC clearly stating that a health professional should be involved in the assessment, there was no clinician present, which meant that there was no one to make the case for my grandad’s needs.