Guiding the way: a better continuing healthcare system for dementia
NHS continuing healthcare (CHC) can be a lifeline for many people with long-term and complex health needs and their families, providing NHS funding to pay for care on a needs basis.
However, the system of applying and assessing eligibility for CHC is flawed. Many families affected by dementia are struggling to navigate the system – if they are aware of CHC as an option at all. Families are left frustrated and disappointed over decisions that can lead to increased caring responsibilities and a worsening financial situation.
Our new report, Guiding the way: a better continuing healthcare system for dementia,outlines the key challenges and obstacles faced by families affected by dementia when applying for CHC in England.
supporting Admiral Nurses to continually develop their knowledge and understanding of CHC, so they can better support families accessing the care they’re entitled to
we’ve developed a guide on dementia for CHC assessors, which aims to support assessors in completing a robust assessment of a person with dementia. The guide also provides CHC assessors with an understanding of the complexity and variability of dementia and how the condition can affect individuals
We are focusing our campaigning efforts on the CHC system in England initially, but subject to capacity, we will expand our work to address similar issues in the comparable systems within Wales, Northern Ireland and Scotland.