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Campaign with us
for better care and support for people affected by dementia
We’re campaigning for better care so that everyone affected by dementia gets the specialist support they deserve. All too often people living with dementia and their families are left to cope alone. Together we can create a better system.
Guiding the way
Continuing healthcare can be a lifeline for many people with long-term and complex health needs. However, many families affected by dementia struggle to navigate the system – if they are aware of CHC as an option at all. Find out more about our campaign hereFind out more
Only together can we ensure that people affected by dementia have access to the specialist support they need by working in partnership between health professionals and families facing dementiaFind out more
Sign up to our Campaigns Network
Join Dementia UK’s Campaigns Network – together, we can ensure that every family affected by dementia receives the life-changing care they deserve.Find out more
Our work in Parliament
We work with Parliament to raise awareness among decision-makers to ensure that people have their voices heard.
On May 5, 2022, our Director of Clinical Services, Paul Edwards attended the roundtable with the House of Commons Health and Social Care Committee Workforce Expert Panel to conduct an evaluation of the Government’s commitments in the area of health and social care workforce in England. The published report can be read here.
2023 APPG on Dementia
- The APPG on Dementia has launched an inquiry into barriers people have faced whilst getting a dementia diagnosis, particularly in rural and deprived parts of England.
- If you have faced barriers to getting a dementia diagnosis either for yourself or for a loved one in England, the APPG on Dementia wants to hear from you via their survey.
- Please make your voice heard before the inquiry closes on 3rd March 2023
2022 APPG on Dementia
- In February 2022, at the oral evidence session for the APPG, Paul Edwards, highlighted the role a social care workforce can play in enabling people with dementia to live better lives.
- Paul also highlighted the important role of the dementia specialist Admiral Nurse and the quote below was included in the APPG’s report:
Their key focus really is on maintaining family relationships and keeping families together by providing support to the whole family, because we recognise that it’s not just the person that lives with dementia, it’s very often the family that lives with it too. And all of those changes and adaptations and all of the emotional difficulties, practical difficulties and clinical difficulties, Admiral Nurses are there to try and support families through those times. – Paul Edwards
- The inquiry report was launched on November 2, 2022. Read the full report here.
2020 APPG on Coronavirus
- We submitted written evidence about the impact of Covid-19 on families affected by dementia and health and social care nursing professionals.
- Paul Edwards, Director of Clinical Services at Dementia UK was invited to the APPG’s Oral Evidence Session to highlight the issues and our recommendations.
- You can download the interim report which contains findings based on written and oral evidence.
On November 15, 2022 Dementia UK joined 64 other charities to sign an open letter to the Chancellor of the Exchequer, The Rt Hon Jeremy Hunt MP to urge the government to provide unpaid carers the financial support they need to cope with the cost of living crisis. Read the full letter.
We are also members of the Care and Support Alliance and National Voices. Find out more about our work in partnership with these organisations.
Share your experiences
By sharing your experiences, and highlighting the urgent need for improved dementia care and support, you can help us put pressure on the government and local decision-makers to improve life for families affected by dementiaShare your experiences
Talk to your MP
Engaging with your MP can be a great way to make your voice heard and push for improvements in Government policy or local services. For example, you may wish to ask your MP to support you in calling for better dementia care in your areaFind out more
Our letter to the new Prime Minister
We want to see dementia care prioritised at both national and local levels. We have written to the new Prime Minister to ask them to urgently lead the change for a better system and outcomes for everyone affected by dementia.Read more
A guide to integrated care systems
You may have heard about the new integrated care systems in England – but what are they, and what might they mean for health and social care and support for families affected by dementia?Read more
Rachael’s experiences of CHC
Rachael cares for her grandmother and grandfather, who are both living with dementia. She shares how difficult it has been for them to navigate the CHC processRead mroe