Join Dementia UK’s Campaigns Network – together, we can ensure that every family affected by dementia receives the life-changing care they deserve.
Continuing healthcare can be a lifeline for many people with long-term and complex health needs. However, many families affected by dementia struggle to navigate the system – if they are aware of CHC as an option at all.
Only together can we ensure that people affected by dementia have access to the specialist support they need by working in partnership between health professionals and families facing dementia.
On May 5, 2022, our Director of Clinical Services, Paul Edwards attended the roundtable with the House of Commons Health and Social Care Committee Workforce Expert Panel to conduct an evaluation of the Government’s commitments in the area of health and social care workforce in England.
2023 APPG on Dementia
The APPG on Dementia launched an inquiry into barriers people have faced whilst getting a dementia diagnosis, particularly in rural and deprived parts of England.
2022 APPG on Dementia
In February 2022, at the oral evidence session for the APPG, Paul Edwards, highlighted the role a social care workforce can play in enabling people with dementia to live better lives.
Paul also highlighted the important role of the dementia specialist Admiral Nurse and the quote below was included in the APPG’s report:
Their key focus really is on maintaining family relationships and keeping families together by providing support to the whole family, because we recognise that it’s not just the person that lives with dementia, it’s very often the family that lives with it too. And all of those changes and adaptations and all of the emotional difficulties, practical difficulties and clinical difficulties, Admiral Nurses are there to try and support families through those times.
The inquiry report was launched on November 2, 2022.
2020 APPG on Coronavirus
We submitted written evidence about the impact of Covid-19 on families affected by dementia and health and social care nursing professionals. Paul Edwards, Director of Clinical Services at Dementia UK was invited to the APPG’s Oral Evidence Session to highlight the issues and our recommendations.
Download the interim report which contains findings based on written and oral evidence.
On 15th November 2022 we joined 64 other charities to sign an open letter to the Chancellor of the Exchequer, The Rt Hon Jeremy Hunt MP to urge the government to provide unpaid carers the financial support they need to cope with the cost of living crisis.
We are also members of the Care and Support Alliance and National Voices. Find out more about our work in partnership with these organisations.
By sharing your experiences, and highlighting the urgent need for improved dementia care and support, you can help us put pressure on the government and local decision-makers to improve life for families affected by dementia
Engaging with your MP can be a great way to make your voice heard and push for improvements in Government policy or local services.
Discover the latest campaigning news and blogs from Dementia UK.