Campaign with us
for better care and support for people affected by dementia
We’re campaigning for better care so that everyone affected by dementia gets the specialist support they deserve. All too often people living with dementia and their families are left to cope alone. Together we can create a better system.
Join our Campaigns Network to find out first how we’re campaigning for change and how you can get involved.
Guiding the way
Continuing healthcare can be a lifeline for many people with long-term and complex health needs. However, many families affected by dementia struggle to navigate the system – if they are aware of CHC as an option at all. Find out more about our campaign here
Find out moreOnly together
Only together can we ensure that people affected by dementia have access to the tailored information and specialist support they need, when they need it, by working in partnership between health professionals and families affected by dementia
Find out moreCampaigning during coronavirus
Find out what we’ve been doing to highlight how people living with dementia have been affected during Covid-19
Find out moreOur work in Parliament
We work with Parliament to raise awareness among decision makers to ensure that people have their voices heard.
Last year we submitted written evidence to the APPG about the impact of Covid-19 on families affected by dementia as well as the impact on health and social care nursing professionals. Paul Edwards, Director of Clinical Services at Dementia UK was invited to the APPG’s Oral Evidence Session to highlight the issues and our recommendations
You can download the interim report which contains findings based on written and oral evidence.
Our work in partnership
We work in partnership with other organisations who share our vision for better care and support for everyone affected by dementia. We are members of the Care and Support Alliance, Continuing Healthcare Alliance and National Voices.
We are supporting the current campaign ‘Care can’t wait’ lead by The Care and Support Alliance. Find out more about how you can get involved.
Share your experiences
By sharing your experiences, and highlighting the urgent need for improved dementia care and support, you can help us put pressure on the government and local decision-makers to improve life for families affected by dementia.
Latest news
The human cost of NHS continuing healthcare for families with dementia
Our CEO Dr Hilda Hayo talks about how our report, Guiding the way, highlights the issues families face throughout the CHC process
Read more
Rachael’s experiences of CHC
Rachael cares for her grandmother and grandfather, who are both living with dementia. She shares how difficult it has been for them to navigate the CHC process
Read more
Our statement on the government’s health and social care announcement
Director of Clinical Services, Paul Edwards, has issued a statement regarding the recent health and social care announcement
Read more