Michael chatting to his Admiral Nurse

Campaign with us

for better care and support for people affected by dementia

We’re campaigning for better care so that everyone affected by dementia gets the specialist support they deserve. All too often people living with dementia and their families are left to cope alone. Together we can create a better system.

Join our Campaigns Network to find out first how we’re campaigning for change and how you can get involved.

Guiding the way

Continuing healthcare can be a lifeline for many people with long-term and complex health needs. However, many families affected by dementia struggle to navigate the system – if they are aware of CHC as an option at all. Find out more about our campaign here

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Only together

Only together can we ensure that people affected by dementia have access to the specialist support they need by working in partnership between health professionals and families facing dementia

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Campaigning during coronavirus

Find out what we’ve been doing to highlight how people living with dementia have been affected during Covid-19

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Our work in Parliament

We work with Parliament to raise awareness among decision makers to ensure that people have their voices heard.

Last year we submitted written evidence to the APPG about the impact of Covid-19 on families affected by dementia as well as the impact on health and social care nursing professionals. Paul Edwards, Director of Clinical Services at Dementia UK was invited to the APPG’s Oral Evidence Session to highlight the issues and our recommendations

You can download the interim report which contains findings based on written and oral evidence.

On February 24, 2022 at the APPG on Dementia our Director of Clinical Services, Paul Edwards, highlighted what role a social care workforce can play in enabling people with dementia to live the lives they wish to lead, and the barriers in place that stop this happening.

Our work in partnership

We work in partnership with other organisations who share our vision for better care and support for everyone affected by dementia. We are members of the Care and Support Alliance, Continuing Healthcare Alliance and National Voices.

We are supporting the current campaign ‘Care can’t wait’ lead by The Care and Support Alliance. Find out more about how you can get involved.

Dementia UK joined 78 other charities to sign an open letter regarding the cost of living crisis facing unpaid carers. On 18th March 2022 the letter was sent to the Chancellor of the Exchequer, Rt Hon Rishi Sunak to urge the Government to provide unpaid carers with increased and targeted financial support to help with the unprecedented financial challenges they are are experiencing. Read the letter here.

Share your experiences

By sharing your experiences, and highlighting the urgent need for improved dementia care and support, you can help us put pressure on the government and local decision-makers to improve life for families affected by dementia.

Latest news

A carer sits on a sofa staring into the distance

The human cost of NHS continuing healthcare for families with dementia

Our CEO Dr Hilda Hayo talks about how our report, Guiding the way, highlights the issues families face throughout the CHC process

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Rachael and her grandfather, smile at the camera, both wearing Christmas hats

Rachael’s experiences of CHC

Rachael cares for her grandmother and grandfather, who are both living with dementia. She shares how difficult it has been for them to navigate the CHC process

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Admiral Nurse talking to a family member outside

Campaigning to improve the quality and accountability of NHS continuing healthcare

We are campaigning to ensure the new proposed Integrated Care Systems have clear guidance on delivering CHC packages that work better for families living with dementia.

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