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Over 60,000 people in England are estimated to have young onset dementia, where symptoms develop under the age of 65.
People are often working, raising families, and caring for others. Young onset dementia turns their lives and future plans upside down.
Yet most services are not designed for people of working age. Diagnosis takes over four years on average and nearly half remain undiagnosed. Even after diagnosis, many struggle to access age-appropriate care.
We have a clear opportunity to fix the situation.
Dementia UK and the Young Dementia Network have created a practical framework to help the NHS deliver faster diagnosis and age-appropriate support.
We are ready to work with local and national health systems so that no one faces young onset dementia alone.
A young onset dementia care framework
Download the full framework for a young onset dementia pathway for ICBs
A summary version of the young onset dementia care framework
Download the summary version of the framework for a young onset dementia pathway for ICBs.
