Dementia Helpline0800 888 6678

Share your experiences of continuing healthcare

Thank you for your interest in sharing your experiences of NHS continuing healthcare (CHC).


Our Fix the funding campaign sets out our recommendations for making CHC work better for families affected by dementia, and we are committed to working both nationally and locally to make this a reality. We would like to build up a better picture of how CHC works in local areas to help us in our engagement with national and local decision-makers.

Please use the box below to share your experiences. You are free at any stage to choose if, or how, we use your experiences. Your details will be kept confidentially and securely and we will not share your experiences without your approval. Please contact if you have any questions, or if you need any help completing this form.

  • Max. file size: 40 MB.
    Sharing a photo with us to accompany your story means that we can share your story in more places. If you’d like to share one, please upload it here (jpg, png, or pdf format). We won’t use your photo without contacting you first.
  • We are focusing on the CHC system in England initially, but subject to capacity, we will expand our work to address similar issues in the comparable systems within Wales, Northern Ireland and Scotland.
  • Dementia UK are committed to protecting your personal data. Please view our full privacy policy at If you would like to change how you are contacted by us, simply contact our Supporter Care team 0300 365 5500 or email