Useful publications about young onset dementia

Young Dementia Network resources

The Young Dementia Network has created a range of useful publications and resources including:

• a personal checklist for members of the public who are concerned about signs and symptoms of young onset dementia  
• ID cards for people with young onset dementia and their family / supporters for them to use when out and about  
•  A leaflet to raise awareness of young onset dementia for use in GP surgeries
• An information leaflet for people who have been newly diagnosed, ideal for use in diagnostic clinics
• a young onset dementia decision-making guide for GPs to aid their recognition of the symptoms of dementia in younger people 

Information about young onset dementia

• What is young onset dementia? 
• Young onset dementia – Understanding your diagnosis  – an Alzheimer’s Society publication
• Approaching an unthinkable future – Understanding the support needs of people living with young onset dementia – a resource based on the experiences of people living with young onset dementia, created by Dementia Pathfinders.
• Younger people with dementia – living well with your diagnosis  – produced jointly by NHS Health Scotland and Alzheimer Scotland.
• Younger onset dementia – a practical guide  – produced by Alzheimer’s Australia.
• Young onset dementia – produced by Alzheimer’s Research UK

Information about frontotemporal dementia

• Understanding frontotemporal dementia (FTD)
• Frontotemporal dementia (FTD): Understanding your diagnosis – publication written by the Alzheimer’s Society.
• Understanding the genetics of FTD  – a booklet created by the Association for Frontotemporal Degeneration (USA).

Information for children/young people

• The milk’s in the oven – a booklet about dementia for children and young people.

Information about employment, driving and financial matters

• Employment and young onset dementia – a leaflet created by Dementia UK.
• Driving with Dementia – My Experiences – Dr James McKillop shares his personal experience of giving up driving due to a dementia diagnosis.
• Driving and dementia – a leaflet created by Dementia UK

Information about support and care

• Our Dementia Our Rights – a guide which aims to highlight as simply as possible the importance of human and civil rights in ensuring support, inclusion and dignity for people with dementia.
• Psychological dimensions of dementia: Putting the person at the centre of care – the report was put together by the British Psychological Society Dementia Advisory Group. It presents a psychological perspective on the nature and experience of dementia, outlines the extensive contributions that psychologists have made in this field, and issues a number of recommendations on how to improve understanding and care for those experiencing dementia and their families.
• Supporting and accommodating people with dementia at professional conferences and other events – a Dementia Alliance International publication written using feedback from people with dementia and family care partners since 2012.
• Making an Impact Together –  a guide written by and with several groups which are members of the DEEP network. The aim of the guide is to help other people with dementia in influencing and activism groups.