Find young onset dementia support groups and services

I really enjoyed today. I’ve been feeling a bit low, and it was great to be reminded that there is help and support out there. Despite family and friends, it can be lonely and only others who are going through the same things can truly understand what it’s all about.

Anne, family member

Young onset dementia impacts on your life in many ways, and you should not be afraid to ask for help when you need it. Connecting with and receiving support from others who understand your situation can make a huge difference and help you to get the most out of life.   

Groups and support services tailored to younger people can be difficult to locate, and provision is patchy across the UK. What is available to you will depend on where you live, and what you are looking for.   

To help you find out what is available locally, we have compiled a searchable listing of face to face and online groups and services across the UK, that are tailored to the needs of people with young onset dementia.    

Please use the map / search tool below to search for young onset dementia groups and services in your area. 

Non-dementia related community groups and activities can also provide a valuable source of connection and interest. You might also want to look into what is going on in the area where you live.   

Please note: we do not have personal knowledge of all the groups and services included in this listing. We keep the information as up-to-date as we can but recommend you make contact with groups before attending to be sure the details listed are current. Inclusion does not constitute an endorsement from Dementia UK.  

In addition to the support groups and services provided in this section, anyone with a question or concern about young onset dementia can call our Dementia Helpline for free on 0800 888 6678, send an email to helpline@dementiauk.org or fill in the form on this page. 

If you are looking for young onset dementia support in Oxfordshire, click here to find out more about our Young Dementia Oxfordshire service.

Do you host or attend a group or service?

If you provide, or attend, young onset dementia group or service that we could add to our listing, please share the information with us via our webform

Contact us

Update your group or service listing

If your onset dementia group or service is listed, do let us know if the details need to be updated

Email us

Setting up a young onset dementia group

If you are thinking of setting up a young onset dementia group, you might find this guidance useful

Click here