Finally, in November 2021, we saw the neurologist. She made Steve do lots of tests, and straight away, she said she thought he had Lewy body dementia. Neither of us had heard of it before – it was traumatic.
We received a letter confirming the diagnosis a week before Christmas. Steve was only 58.
By the time we got the diagnosis, it felt like Steve had been replaced by someone else. It was like living with a totally different person. He was hallucinating. He didn’t know who I was, or where he was. I had to constantly guide him around the house. He tried to climb through the kitchen window because he was hallucinating and thought someone was chasing him. He was awake all through the night. It was exhausting.
Tracy and Steve at the Royal Victoria Hotel, Sheffield for their dance school’s Tea Dance