It was so stressful constantly thinking about what was coming next, but Helen reminded us that we had a long journey ahead of us and we didn’t need to rush into anything. I literally felt my shoulders come down during the call, and a weight was lifted.
It was also helpful to be able to speak to Helen with my sister. If I had been on the call on my own and had to relay the information, it may not have had the same impact. It was helpful for us both to hear advice from a professional rather than from each other. We got to share that sense of relief together. It has made my sister and I closer, which is really positive.
Helen put things into perspective
Since her diagnosis, Mum has become very gentle, and we get on well. However, I’ve accepted that she isn’t really my mum anymore. It’s happening slowly, but I’m losing her bit by bit. I never know if she is telling me factual information, a totally imaginary situation or something in between.
But it’s been so much easier to cope since speaking to Helen. I was going into panic mode and worrying about everything that might happen in the future. Alzheimer’s disease is unpredictable, but Helen helped us to focus on the present moment and take one day at a time.
I was terrified about how I would cope in the future and always on high alert. Now I feel like I can make time for my own life. I went from waking up in the morning panicking to feeling calm and in control. Helen put things into perspective.
I felt such a huge sense of relief after the call and thought the service was brilliant. Helen has been a massive psychological support. It’s reassuring to know there are people like her to guide and help us when we need it.