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“Our Admiral Nurse initiated a conversation about end of life”
As a palliative care nurse, Jenny reflects on the importance of empathy during end of life care and how her...
Personal stories
Read personal stories from people living with a diagnosis, their family members and friends – as well as our dementia specialist Admiral Nurses.
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“The lack of recognition of unpaid carers is frustrating”
Will shares how his mum's diagnosis impacted the family and highlights the importance of advocating for young carers.
A supportive workplace meant the world after Mum’s diagnosis
When Rosie’s mum, Dawnie, was diagnosed with young onset Alzheimer’s disease, her employer ensured caring responsibilities were fully supported.
I am living with Lewy body dementia; it doesn’t define me
Phil highlights the difference it makes when someone living with dementia receives appropriate support in the workplace. He urges employers...
I can’t imagine having more empathetic bosses
Glenn shares how flexible working arrangements and support from his managers enables him to continue working whilst prioritising his wife...
Watching my husband change before my eyes
Pratibha shares her experience of caring for her late husband, Narayan Gopala, who lived with vascular dementia and died in...
“You don’t have to do it alone as a young carer” – Chloe’s story
Chloe shares her experience of being a young carer for her Mum, who was diagnosed with frontotemporal dementia at 47,...
Becoming a hand-catcher – Sylvia’s story
Since being diagnosed with Alzheimer’s disease in 2019, Sylvia has found a new purpose in expressing her feelings through painting.
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Let’s talk about guilt – Lizzie’s experience
Lizzie talks about the guilt she felt caring from a distance for her dad, Rob, who was diagnosed with frontotemporal...
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Let’s talk about guilt – Penny’s experience
Penny talks about the guilt she has felt surrounding her mum's move into residential care.
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Let’s talk about guilt – Ricky’s experience
Ricky talks about the guilt he felt about as a carer for his Gran, Harbaksh, who had Alzheimer’s disease and...
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Let’s talk about guilt – Susan’s experience
Susan cared for her husband, Peter, who was diagnosed with Alzheimer’s disease in 2014 and died in 2021.
Finding purpose in grief – Helen’s story
Helen reflects on her dementia journey and grief after husband Clive died from frontotemporal dementia in 1999.
Andy’s story – We live with dementia
Andy, 52, lives with young onset dementia. As part of our ‘We live with dementia’ campaign, he shares how his...