After a diagnosis of dementia: next steps checklist
A diagnosis of dementia can be a big shock for the person with the condition and their family. It can be difficult to know what to do next – including what decisions need to be made, who to tell, and what support is available.
This checklist of the next steps to take after a diagnosis of dementia has been written by our specialist Admiral Nurses. You will also find links to further information that you can turn to as and when you need it.
A lasting power of attorney (LPA) is a legal document that nominates a person to make decisions on behalf of a person with dementia, if and when they no longer have the capacity to make these decisions themselves.
There are two types of LPA:
health and welfare
property and financial affairs
It is very important to draw up both types of LPA while the person with dementia still has the capacity to do so.
Find out more information on applying for an LPA here.
Discuss plans and wishes for the future with your family, including:
your wishes regarding your future care
your wishes regarding your future medical treatment
your hopes about your involvement with activities
It is a good idea to compile an Advance Care Plan: a document that outlines a person’s future wishes for their care and medical treatment. For more information and an Advance Care Plan template, click here.
Anyone who cares for a person with dementia is entitled to a Carer’s Assessment. This will identify what support is needed to help you in your caring role, such as home help for the person with dementia and aids and adaptations for daily living. You will need to request the assessment from your Local Authority.
If you are diagnosed with dementia and still working, it is important to tell your employer so that steps can be taken to support you in your job.
Similarly, if you are caring for someone with dementia, telling your employer will help them support you in your caring responsibilities so that you can continue working and caring as effectively as possible.