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Consultant Admiral Nurse Hannah Gardner

Five key takeaways from this year’s dementia conferences

Hannah Gardner, Consultant Admiral Nurse for Children and Young People, shares her key learnings from this year’s dementia conferences.

We know that dementia affects the whole family, including children and young people. My role as Consultant Admiral Nurse for Children and Young People at Dementia UK helps younger members of the family feel seen and heard. I regularly support young people and their families who are affected by dementia, but another important aspect of my role is raising awareness of our Consultant Admiral Nurse service for Children and Young People and promoting best practice in supporting them.

Over the past year, I’ve had the privilege of presenting at several conferences, sharing my expertise as a Consultant Admiral Nurse. At these conferences, I shared various aspects of my role, including my work as an ambassador, practical insights from clinical practice and the importance of providing inclusive, age-appropriate support.

I have also advocated for greater recognition of the unique challenges faced by younger family members, highlighting the need to bring their voices and experiences to the forefront of dementia care and support.

The conferences I presented at included:

  • The Alzheimer’s and Dementia Show
  • The UK Dementia and Palliative Care Conference
  • The Liverpool Dementia and Ageing Forum
  • The Admiral Nurse Forum
  • Dementia UK’s Summer School

I also attended the UK Dementia Congress.

Dementia UK has even had a global impact by participating in Lorenzo’s House Youth Summit, which supports children and young people worldwide who have a parent living with young onset dementia (where symptoms develop before the age of 65). This was a fantastic opportunity to connect with over 40 professionals from across the globe, share expertise and showcase our commitment to improving support in the UK.

These events have provided valuable opportunities for networking, sharing best practice and collaborative learning to strengthen family-centred approaches to dementia care.

What are my five key takeaways from the conferences?

  1. Children and young people must be seen, recognised and supported. Their unique experiences should be acknowledged, and support must be inclusive, age-appropriate and accessible.
  2. Skilled professionals make a real difference. Trained professionals play a vital role in identifying young people in caring roles and providing meaningful, compassionate support.
  3. Children and young people must be involved in shaping support. They should be actively included in designing services, education, research, resources and awareness campaigns.
  4. A family-centred approach is essential. Support should consider the whole family, recognising the impact of a dementia diagnosis on every member, including children.
  5. More research and evidence-based interventions are needed. There is a clear need for further research into the specific support needs of children and young people, and for developing effective, evidence-based approaches.

Read more from Hannah about our Consultant Admiral Nurse service for Children and Young People.