This is our catalogue of published research, where you will find publications grouped by research topic and then by year. Some of our publications are listed multiple times under each header and category that is relevant.
Carers and families
In this section, you will find publications covering the topics of: carers, families, support for carers, and psychosocial interventions for carers.
2025
- Anticipatory grief in dementia: supporting family carers
- Living with dementia and other long-term conditions: what works for patient-caregiver dyads? A realist review
- Understanding dynamics to Streamline Access: Systems Engineering and Agent-Based Probabilistic Modelling in Memory Assessment Services
2024
- The power of a cup of tea: psychosocial interventions in dementia
- Using Accelerated Experience-Based Co-Design to adapt a Dutch online intervention to support family carers of people with dementia in the UK context
2023
- Family experiences of inpatient mental health care for people with dementia
- Hope: a tool for working with families affected by dementia during the Covid-19 pandemic
2022
- Advance care planning for people with dementia and their families
- Guidance for family about comfort care in dementia a: a comparison of an educational booklet adopted in six jurisdictions over a 15year timespan
- If you want to know the road ahead, ask those coming back
2021
- A decision aid to support family carers of people living with dementia towards the end-of-life
- Developing and evaluating online Covid centric advance care planning training and information resources for nursing staff and family members in nursing homes
- Developing country-specific questions about end-of-life care for nursing home residents with advanced dementia
- Family and other unpaid carers supporting people with dementia
- ‘Four walls and a garden’: Exploring the experiences of families affected by dementia during the Covid-19 pandemic
- One call makes a difference: An evaluation of the Alzheimer’s Association National Helpline on dementia caregiver outcomes
- Key components of post-diagnostic support for people with dementia and their carers
- World Alzheimer’s Month
2020
- Achieving positive outcomes in complex cases: The Admiral Nurse Dementia Helpline (Innovative Practice)
- A decision aid to support family carers of people living with dementia towards the end-of-life
- Admiral Nurses delivering workplace clinics for family carers: Innovative practice
- How do Admiral Nurses and care home staff help people living with dementia and their family carers prepare for end-of-life?
- Increasing need for telehealth services for families affected by dementia as a result of Covid-19
- Minimising long-term effect of Covid-19 in dementia care
- One call makes a difference: An evaluation of the Alzheimer’s Association National Helpline on dementia caregiver outcomes
- Supporting family carers via the Admiral Nurse helpline
Communication and person-centred care
In this section, you will find publications covering the topics of: communication, person-centred care, life stories, identity, and decision-making.
2023-2024
- Dementia and communication
- How and when would you like to die?
- Life stories in dementia care: ensuring person-centred care
- Person-centred communication with people with dementia
- Who am I? Identity, person-centred care and dementia
2021-2022
- Advance care planning in dementia: Having a voice
- Handbags and glad rags: preserving identity in dementia
- Life course of dementia: Nursing contribution
2020
Covid-19 related topics
In this section, you will find publications covering any research related to Covid-19 as well as: technology use because of Covid-19, telehealth, and virtual assesments.
2023
- A time for adaptation and reflection: the experience of Admiral Nurses during Covid-19
- Hope: a tool for working with families affected by dementia during the Covid-19 pandemic
- Innovations in dementia and ageing care
- Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study
2022
- Implementing and evaluating online advance care planning training in UK nursing homes during Covid-19: findings from the Necessary Discussions multi-site case study project
- Using online practice action learning sets for clinical supervision
2021
- Developing and evaluating online Covid centric advance care planning training and information resources for nursing staff and family members in nursing homes
- Ethical care during Covid-19 for care home residents with dementia
- Evaluating the experiences of Admiral Nurses during the Covid-19 pandemic
- ‘Four walls and a garden’: Exploring the experiences of families affected by dementia during the Covid-19 pandemic
- Long Covid and beyond: post traumatic stress disorder and delayed onset PTSD
- The impact of Covid-19: Virtual assessment and the new normal
- The story of an emerging crisis: the impact of Covid-19 on care home residents with dementia in the UK
2020
Dementia and cognitive health
In this section, you will find publications covering the topics of: memory assessment and diagnosis, remote assessment, living with dementia, young onset dementia, delirium, dementia with multiple health conditions, and sensory changes.
2024-2025
- Living with dementia and other long-term conditions: what works for patient-caregiver dyads? A realist review
- The Major Conditions Strategy is to be welcomed on several counts
2021-2023
- Cognitive impairment in older adults with cancer
- Dementia 2: diagnosing young-onset dementia and supporting patients
- Dementia: recognition and cognitive testing in primary care settings
2020
Diagnosis and medical conditions
In this section, you will find publications covering the topics of: diagnosis, multiple health conditions, the major conditions strategy, signs and symptoms, delirium, continence, depression, pain, frailty, long term conditions, medications, and mortality predictors.
2025
- Diagnosis of dementia in different care settings: a guide for nurses
- Mortality and Its Predictors Amongst Patients With Advanced Dementia Receiving Psychiatric Inpatient Care
- Medications: common issues and questions answered
- Recognising dementia in a primary care setting
2024
- Frailty and dementia: when they go hand in hand
- Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care
- Recognising and assessing for dementia in people with learning disabilities
- The Major Conditions Strategy is to be welcomed on several counts
2023
- Assessing and managing pain in older people with dementia
- Dementia and delirium: recognising common factors
- Dementia 1: types, risk factors, and recognising signs and symptoms
- Dementia 2: diagnosing young-onset dementia and supporting patients
- Frailty and dementia: when they go “hand in hand”
- Innovations in dementia and ageing care
- Recognition and assessment of dementia in a primary care setting
2022
- Advance care planning for people with dementia and their families
- Dementia and sensory impairment
- Dementia is everybody’s business: a call for issues, learning needs and case studies
- Understanding approaches to continence
2021
- Assessment of behavioural and psychological symptoms of dementia in veterans with a diagnosis of dementia
- Cognitive impairment in older adults with cancer
- Dementia: recognition and cognitive testing in primary care settings
- Key components of post-diagnostic support for people with dementia and their carers
- Life course of dementia: Nursing contribution
- Managing comorbid conditions and Dementia
- Palliative care in Creutzfeldt-Jakob disease: looking back, thinking ahead
- Symptoms of dementia or post-traumatic stress or post traumatic stress disorder
- The three Ds: dementia, delirium and depression
- Using video consultations to support family carers of people living with dementia
2020
- Advance care planning and decision-making in dementia care: a literature review
- Diagnosis of dementia: The impact of Covid-19
- Frailty leads to higher mortality and hospital use
- Home care takes on the challenge of falls at home: innovative practice
- Recognising pain in dementia: what has changed?
- Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences
End of life care and palliative care
In this section, you will find publications covering the topics of: end of life care, palliative care, advance care planning, grief, pain, pain management, mortality predictors, spiritual interventions, death, nutrition, and compassionate communities.
2025
- Establishing a research partnership for delivering palliative and end-of-life care for older people in rural and remote areas: a formative mixed-methods study
- It’s my life, it’s my choice and I want to say when
- Medication management in end-of-life dementia care.
2024
- Challenging cases in palliative and end of life care
- Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care
- How and when would you like to die?
- Innovative and best models of palliative and end-of-life care – with focus on rural and remote communities
- Psychosocial interventions in palliative and end-of-life care
2023
- Consensus definition of advance care planning in dementia: A 33-country Delphi study
- Dementia 7: palliative and end-of-life care for people with dementia
2022
- Advance care planning for people with dementia and their families
- Guidance for family about comfort care in dementia
- Implementing and evaluating online advance care planning training in UK nursing homes during COVID-19: findings from the Necessary Discussions multi-site case study project
- Sleeping-related distress in a palliative care population: influence of symptom clusters
2021
- A decision aid to support family carers of people living with dementia towards the end-of-life
- Admiral Nurse Case Management within Enhanced Health in Care Homes
- Advance care planning in dementia: Having a voice
- Cognitive impairment in older adults with cancer
- Developing country-specific questions about end-of-life care for nursing home residents with advanced dementia
- Palliative care in Creutzfeldt-Jakob disease: looking back, thinking ahead
- There is no evidence to suggest that ET feeding improves survival in people with severe dementia
2020
- Access to specialist palliative care to manage pain in people dying at home: give them a voice
- Advance care planning and decision-making in dementia care: a literature review
- A valuable specialist role to support end of life care
- Frailty leads to higher mortality and hospital use
- Home care takes on the challenge of falls at home: innovative practice
- How do Admiral Nurses and care home staff help people living with dementia and their family carers prepare for end-of-life?
- Making tough decisions about end-of-life care in dementia
Health and social care systems
In this section, you will find publications covering the topics of: health and social care, care settings, community care, primary care, acute care, case management, intergrated care, models of care, long term care, frameworks of care, major conditions strategy,inpatient mental health wards, admission, psychiatric hospitals, and care in rural communities.
2025
- Diagnosis of dementia in different care settings: a guide for nurses
- Establishing a research partnership for delivering palliative and end-of-life care for older people in rural and remote areas: a formative mixed-methods study
- Experiences and Management of Distress and the Use of Music, Including Music Therapy, on NHS Inpatient Mental Health Dementia Wards: A Qualitative Study
- Mortality and Its Predictors Amongst Patients With Advanced Dementia Receiving Psychiatric Inpatient Care
- Recognising dementia in a primary care setting
- Understanding dynamics to Streamline Access: Systems Engineering and Agent-Based Probabilistic Modelling in Memory Assessment Services
2024
- Dementia in-patient units in psychiatric hospitals: research priority setting
- Innovative and best models of palliative and end-of-life care – with focus on rural and remote communities
- Supporting distress behaviours in people with dementia in the community
- The Major Conditions Strategy is to be welcomed on several counts
- Using Accelerated Experience-Based Co-Design to adapt a Dutch online intervention to support family carers of people with dementia in the UK context
2023
- Dementia 3: the use and management of medicines in dementia care
- Family experiences of inpatient mental health care for people with dementia
- Registered care home managers’ experiences of responding to the national care home visiting guidance in England during the Covid-19 pandemic; a multi-method qualitative study
- Modifiable and non-modifiable risk factors for dementia: what primary care nurses need to know
- Recognition and assessment of dementia in a primary care setting
- Reducing and managing dementia risk in Primary Care
- Supporting nurse leaders to recognise and mitigate the effects of moral injury
2022
- Admiral Nurse Case Management within Enhanced Health in Care Homes
- Advance care planning for people with dementia and their families
- Dementia is everybody’s business: a call for issues, learning needs and case studies
- Implementing and evaluating online advance care planning training in UK nursing homes during Covid-19: findings from the Necessary Discussions multi-site case study project
- Understanding approaches to continence
2021
- Admiral Nurse Case Management in Primary Care
- Admiral Nurse Case Management within Enhanced Health in Care Homes
- Dementia: recognition and cognitive testing in primary care settings
- Developing and evaluating online Covid centric advance care planning training and information resources for nursing staff and family members in nursing homes
- Enhanced healthcare in care homes for people with dementia: the Admiral Nursing offer
- Ethical care during Covid-19 for care home residents with dementia
- Key components of post-diagnostic support for people with dementia and their carers
- Palliative care in Creutzfeldt-Jakob disease: looking back, thinking ahead
- Stuck between a rock and hard place: The future of health & social care
- The story of an emerging crisis: the impact of Covid-19 on care home residents with dementia in the UK
2020
- Admiral Nursing—A Model of Specialist Dementia Care in Acute Hospitals
- A valuable specialist role to support end of life care
- Effectiveness of different post-diagnostic dementia care models delivered by primary care
- Implementing post diagnostic dementia care in primary care: a mixed-methods systematic review
- Integrated partnerships for people with dementia and their families
- Mapping post-diagnostic dementia care in England: an e-survey
- Task-shifted approaches to postdiagnostic dementia support: a qualitative study exploring professional views and experiences
Mental health and psychosocial wellbeing
In this section, you will find publications covering the topics of: mental health, wellbeing, psychosocial interventions for people with dementia, PTSD, distress, music therapy, sleep, behaviour that challenges, inpatient mental health wards, psychiatric hospitals, mindfulness, hope, and isolation.
2025
- A psychometric study of the Flourishing Scale for people living with dementia
- Best practices for supporting researchers’ mental health in emotionally demanding research across academic and non-academic contexts.
2024
- Dementia in-patient units in psychiatric hospitals: research priority setting
- How and why music therapy reduces distress and improves well-being in advanced dementia care: a realist review
- Psychosocial interventions in palliative and end-of-life care
- Supporting distress behaviours in people with dementia in the community
- Using therapeutic lies – an ethical challenge for nurses when caring for people with dementia
2023
- Dementia 6: understanding distressed behaviours in people with dementia
- Family experiences of inpatient mental health care for people with dementia
- Hope: a tool for working with families affected by dementia during the Covid-19 pandemic
- Supporting nurse leaders to recognise and mitigate the effects of moral injury
2020-2022
- Assessment of behavioural and psychological symptoms of dementia in veterans with a diagnosis of dementia
- Long Covid and beyond: post traumatic stress disorder and delayed onset PTSD
- Sleeping-related distress in a palliative care population: influence of symptom clusters
- Symptoms of dementia or post-traumatic stress or post traumatic stress disorder
- The three Ds: dementia, delirium and depression
- ‘Use it or lose it’: the relationship between the frequency of word puzzle use and cognitive function
Nursing, Admiral Nurses, and professional practice
In this section, you will find publications covering the topics of: nursing, Admiral Nursing, specialist nursing, training, skills and competencies, leadership, record keeping, ethical practice, accute care, health education, outcome measurement, interprofessional learning, reflective practice, and practical learning.
2024
- A multi-perspective evaluation of the Admiral Nurse Service in South Tyneside
- An exploration of how specialist dementia nurses perceive and maintain the skills and competencies that frame their specialism: A qualitative survey
- Challenging cases in palliative and end of life care
- Stakeholder Consultation to Establish Research Priorities for Specialist Dementia Nursing in the United Kingdom
- Supporting distress behaviours in people with dementia in the community
- The power of a cup of tea: psychosocial interventions in dementia
- Using therapeutic lies – an ethical challenge for nurses when caring for people with dementia
2023
- A time for adaptation and reflection: the experience of Admiral Nurses during Covid-19
- Dementia 3: the use and management of medicines in dementia care
- Frailty and dementia: when they go “hand in hand”
- Hope: a tool for working with families affected by dementia during the Covid-19 pandemic
- Nurses must be confident in meeting the needs of people with dementia
- Specialist dementia nursing models and impacts: A systemic review
- Supporting nurse leaders to recognise and mitigate the effects of moral injury
2022
- Admiral Nurse Case Management within Enhanced Health in Care Homes
- Dementia is everybody’s business: a call for issues, learning needs and case studies
- Time for a new nursing branch
- Using online practice action learning sets for clinical supervision
2021
- Admiral Nurse Case Management within Enhanced Health in Care Homes
- Dementia: recognition and cognitive testing in primary care settings
- Developing and evaluating online Covid centric advance care planning training and information resources for nursing staff and family members in nursing homes
- Enhanced healthcare in care homes for people with dementia: the Admiral Nursing offer
- Evaluating the experiences of Admiral Nurses during the Covid-19 pandemic
- Just for the record: a framework for specialist nursing documentation
- Life course of dementia: Nursing contribution
- Managing comorbid conditions and Dementia
- One call makes a difference: An evaluation of the Alzheimer’s Association National Helpline on dementia caregiver outcomes
- Stuck between a rock and hard place: The future of health & social care
- Teaching and learning styles and why they matter
- The impact of Covid-19: Virtual assessment and the new normal
- Understanding behaviours in dementia
- Using video consultations to support family carers of people living with dementia
2020
- Achieving positive outcomes in complex cases: The Admiral Nurse Dementia Helpline (Innovative Practice)
- Admiral Nursing—A Model of Specialist Dementia Care in Acute Hospitals
- Admiral Nurses delivering workplace clinics for family carers: Innovative practice
- A time to celebrate the professional care workforce
- Dementia in prisons: the Admiral Nurse offer
- Effectiveness of different post-diagnostic dementia care models delivered by primary care
- How do Admiral Nurses and care home staff help people living with dementia and their family carers prepare for end-of-life?
- Implementing post diagnostic dementia care in primary care: a mixed-methods systematic review
- Integrated partnerships for people with dementia and their families
- Supporting family carers via the Admiral Nurse helpline
Research and evidence
In this section, you will find publications covering the topics of: qualitative, quantitative, and mixed methods of research, systemic reviews, international research, case studies, outcome measurement, dissemination, PPI (patient and public involvement), and collaborative research.
2024-2025
- Best practices for supporting researchers’ mental health in emotionally demanding research across academic and non-academic contexts.
- Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care
- Meaningful PPI
2020
Risk, safety and ethics
In this section, you will find publications covering the topics of: risks, risk management, behaviour that challenges, safeguarding, exploitation, ethical practice, and falls.
2024
- Challenging cases in palliative and end of life care
- Risk management and decision making in dementia care
- Using therapeutic lies – an ethical challenge for nurses when caring for people with dementia
2023
- Dementia 1: types, risk factors, and recognising signs and symptoms
- Dementia 4: promoting quality of life, handling risk and managing behaviour
- Modifiable and non-modifiable risk factors for dementia: what primary care nurses need to know
- Reducing and managing dementia risk in Primary Care
2020-2021
Technology and digital health
In this section, you will find publications covering the topics of: technology, digital healthcare, remote assesments, and telehealth.
2024
- Innovative and best models of palliative and end-of-life care – with focus on rural and remote communities
- Using Accelerated Experience-Based Co-Design to adapt a Dutch online intervention to support family carers of people with dementia in the UK context
2022
2021
- The impact of Covid-19: Virtual assessment and the new normal
- Using video consultations to support family carers of people living with dementia
2020
Underserved Populations and Equity
In this section, you will find publications covering the topics of: LGBTQ+, minority groups, underserved populations, culture, neurodevelopmental differences, cross-cultural comparisons, veterans, and prisons.
2024
2021
- Assessment of behavioural and psychological symptoms of dementia in veterans with a diagnosis of dementia
- LGBTQ+ people living with dementia: an underserved population
- Symptoms of dementia or post-traumatic stress or post traumatic stress disorder
2020
- Dementia in prisons: the Admiral Nurse offer
- LGBTQ+ people living with dementia: an under-served population
- Minority groups: underserved or underserved populations?
- Preventable and manageable risk factors of dementia: addressing inequalities
- Reducing inequities in access to health care for the homeless