Stories of people living with young onset dementia

Read the inspiring personal stories of people who are living with young onset dementia.

They share in their own words the impact the condition has had on their lives and how they have adapted.

Chris and Heather's story

Chris's story

Chris and her partner Heather talk about Chris’s initial diagnosis of young onset vascular dementia and subsequent diagnosis of Lewy body dementia. They are supported by Admiral Nurse Rachel

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Peter and wife Teresa

Peter's story

Peter was diagnosed with young onset Alzheimer’s disease in early 2015 aged 50. He lives in Suffolk with his wife Teresa.  He lives positively with dementia has become an avid cyclist since his diagnosis in order to keep himself fit and active

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Edward and wife Samantha

Edward's story

Edward is living with Posterior Cortical Atrophy. He shares how with the support of his wife and Young Dementia Oxfordshire his keeps himself busy and involved in research, writing and film projects

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Jennifer's story

Jennifer was diagnosed with young onset Alzheimer’s disease aged 63 in 2009. For the last ten years, she has lived alone and has developed a wide range of coping strategies in order to maintain her independence

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Tracey Shorthouse

Tracey's story

Ex-nurse Tracey’s life was turned upside down when she was diagnosed with Posterior Cortical Atrophy when she was 45 years old. She lives alone and has a zest for life. She is as determined as ever to keep positive and active

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Martin Robertson

Martin's story

Martin lives in Scotland where he has become involved in lots of dementia related activities and initiatives. Having struggled to get an accurate diagnosis, He is passionate about the need for earlier diagnosis of dementia in younger people

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Share your story

If you have young onset dementia, or you support someone who is living with the condition, and would like to share your story – do get in touch 

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Personal stories

Read the stories of thfamily members and friends of people who are living with young onset dementia

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