Our response to Baroness Casey’s call for urgent action and leadership on dementia

Publication date: March 5, 2026
- Campaigns
Print this page

Baroness Louise Casey, chair of the Independent Commission on Adult Social Care, spoke at the Nuffield Trust Summit today to call for urgent action from the government on dementia. Baroness Casey’s speech included calls for a number of reforms and changes to dementia care in the UK. Charlotte Lillford-Wildman, Head of Policy and Public Affairs at Dementia UK, said:

“Baroness Casey is right to call for urgent action and strengthened national leadership on dementia. As the leading cause of death in the UK, dementia is one of the greatest health and care challenges we face, yet too many people are left to navigate a fragmented system alone.

“The call for clearer national accountability, faster progress on the Modern Service Framework for Frailty and Dementia and greater scrutiny of NHS Continuing Healthcare is welcome, and reflects the reality many families face every day.

"This must now be a turning point. The Modern Service Framework needs to be ambitious and focused on improving outcomes for people living with dementia – ensuring consistent specialist support and joined-up care across health and social care."

Charlotte Lillford-Wildman, Head of Policy and Public Affairs at Dementia UK

“Baroness Casey’s view of Continuing Healthcare must also not go unheard, accessing Continuing Healthcare can no longer remain an uphill struggle for people with dementia.

“We will bring our clinical expertise and the voices of people living with dementia to work alongside both government and Baroness Casey’s Commission to make that a reality.”

To hear more about our Campaigns, Policy and Public Affairs work, sign up to our Campaigns network. Find out more about our Fix the funding campaign on NHS Continuing Healthcare.