During one of these episodes, the Parkinson’s Nurse called for an ambulance. Before it arrived, Brian came round. Another episode occurred and I had to call the ambulance. He came round again when the paramedics arrived, but he was taken to hospital as a matter of caution.
A day later, I had a call from the hospital to say that he was end-of-life.
The hospital wasn’t the best place for him and he had tears in his eyes when I came to visit him, desperate for me to take him out. I’m thankful that I had the support of Rachel at this time. She sent me information about the PEG (tube feeding) as Brian couldn’t feed himself in the final few months. This helped me understand the implications of having this done, the risks for people with dementia, which includes infections, and helped in making a decision about what was best for Brian. Through Rachel’s input, I decided that caring for him at home was the best thing. And Rachel assisted with this by signposting me to palliative care teams.
Brian died in 2021, peacefully with his family around him.