‘I live with dementia’ campaign

Every three minutes in the UK, someone develops dementia – and all too often, families struggle to know where to turn and are left feeling exhausted, overwhelmed and alone.

Because if you love someone living with dementia, you’re living with it too.

That’s the message behind our ‘I live with dementia’ campaign and why our specialist dementia nurses have put together our new ‘Living with dementia’ guide, which is designed to help you navigate the many changes and challenges of dementia.

What’s inside your guide?

‘Living with dementia’ is written by our specialist nurses – who are known as Admiral Nurses – people living with the diagnosis and their family and friends, and is full of the information you need right now, whether your loved one is yet to get a formal diagnosis or is in the later stages of dementia.

You’ll find ‘need-to-know’ facts about the key issues that may be on your mind – from understanding changes in behaviour and living well with dementia to managing family dynamics and exploring care options.

Whatever you’re going through, you’re not alone – and that’s why we’ve included some of the questions our Helpline nurses hear from people like you, and the expert advice they offer in response.

You can also read stories from families about how they are coping with the ups and downs of dementia.

Real life stories

Aqib and Shahbanu’s story

Siblings, Aqib and Shahbanu, reflect on how their mum’s recent diagnosis of Alzheimer’s disease has affected their lives

Read their story

Penny's story

Penny’s Mum, Rosemary, lives with mixed dementia and is now in a care home. Penny shares the impact of her mum’s diagnosis on her life and how the Helpline supported her

Read their story
Paul at home

Paul's story

Paul’s Dad, Mick, is living with vascular and Lewy body dementia and is now in a care home. Paul shares how he is impacted by his dad’s dementia, despite not being in the same country

Read his story

How we can support you

Whether you have a question that needs an immediate answer or need emotional support when life feels overwhelming, our dementia specialist Admiral Nurses have the time to listen and the knowledge to solve problems. Find out about our services and how we can support you.