Writing to your MP and Clinical Commissioning Groups 

Writing to your local MP and/or CCG will help us raise awareness of the challenges people living with dementia and their families face. We have templates you can use below.

Writing your letter and contact details

Writing to your MP

Always include your name and address. It’s parliamentary protocol that MPs respond to their constituents only, so please include your address and postcode.

You can find out who your local MP is and access their contact details here.

You’re welcome to use the template below as a guide, or not as you prefer. It would be ideal if you are able to include your own experience where indicated below; this helps show how these issues have affected you or your family.

About Clinical Commissioning Groups (CCGs) 

CCGs are in England only and have a strategic role locally, planning out local health services overall. They also have the power to make planning or spending decisions that could expand or improve local specialist dementia support.  

You can find your local Clinical Commissioning Group (CCG) via this link and entering your town or postcode.

You can then find the name of your local CCG Chief Executive and contact details on your local CCG’s website.  

If you would like to email or write to your local Clinical Commissioning Group (CCG) we have created a template below. You’re welcome to use this as a guide, or not as you prefer. It would be ideal if you are able to include your own experience where indicated below; this helps show how these issues have affected you or your family.  

If you live in Wales, Scotland or Northern Ireland

You can write to your local politician. Healthcare is devolved in Scotland, Wales and Northern Ireland. You can contact your local MSP (Scotland), MS (Wales) and MLA (Northern Ireland) here.

You can find and write to your local healthcare provider:

Template letter for MP

Suggested template letter

You can download the template here, or copy and paste the text below onto your word document or email you wish to compose and edit where necessary.  

Dear [RECIPIENT NAME],

Please introduce yourself and your experience of dementia.

My name is [xxxx] and I live within your constituency. My [INSERT RELATIONSHIP] is living with dementia following a diagnosis [xxxx] years/months ago.

Explain why you are writing to your MP. We’ve provided some ideas below from our Only together report, so please use this as a template if you’d like.

I am writing to you because too often people living with dementia are left facing this condition alone, or with inadequate, temporary or sporadic support. When faced with a dementia diagnosis there are often many professionals to meet or involve. For anyone unfamiliar with the health service, this experience can feel bewildering and exhausting. Some families, particularly those with complex needs, also report falling through the gaps between services.

Instead, as a standard, families should have a clinically trained professional as their single point of contact when specialist support and advice is needed. Families should also be provided with information tailored to their needs and circumstances.

Explain why these issues matter to you personally – how do these things affect you and/or your family?

E.g. My family and I have struggled to get the support we need, and my mother’s condition has got so much worse without access to specialist support. There was a lack of communication or follow-up after the diagnosis, which made it difficult for us to know where to turn to, or how to access the care and support that we needed.

Explain what you would like your MP to do. For example:

You may have received good support from your local GP or specialist dementia support services and would like other people to get the same support across your local area.

However, if your experience may have been poor; let your MP know what changes might be helpful – e.g. more advice and information given early in the process, more support offered to carers.

I would be grateful if you could raise these issues with local health commissioners and providers to make specialist dementia support a priority.

Dementia UK is also contacting local GPs and CCGs in England to ask them to share best practice and improve services, as well as offering the charity’s own support, information and services to improve the experiences of families affected by dementia. You can find out more about Dementia UK’s Only together campaign here: www.dementiauk.org/onlytogether

Dementia UK is happy to work with you to identify how support can be improved for families affected by dementia in your constituency. Please do get in touch with Faradane O’Callaghan, Campaigns and Public Affairs Manager, at Dementia UK by emailing campaigns@dementiauk.org to discuss the support Dementia UK can offer.

I look forward to hearing from you.

Yours sincerely,

[NAME]

[FULL ADDRESS] [PHONE NUMBER]

Template Letter for CCGs

Suggested template letter  

You can download the template here, or copy and paste the text below onto your word document or email you wish to compose and edit where necessary.  

It can take time for your CCG to respond, so please be patient. If you have not heard within three weeks, you might want to contact them to follow up the enquiry.  

Dear [RECIPIENT NAME],  

Please introduce yourself and your experience of dementia.  

I am a resident within [name of CCG] CCG and am registered at [name of GP surgery]

My [INSERT RELATIONSHIP] is living with dementia following a diagnosis [xxxx] years/months ago.  

Explain why you are writing to your CCG. We’ve provided some ideas below from our Only together report, so please use this as a template if you’d like.  

I’m writing to you in support of Dementia UK’s Only together campaign, which looks to expand the specialist support offered to people affected by dementia. Too often families are left facing dementia alone, or with very limited access to support and information. GPs and other health professionals work hard to support people affected by dementia, and often want to do more, but are under severe time and capacity pressure. This has only been exacerbated by the Covid-19 pandemic. Without access to the right support, many families will struggle to cope on their own, and in turn increase their reliance on primary or emergency services.  

Explain why these issues matter to you personally – how do these things affect you and/or your family?  

E.g. My family and I have struggled to get the support we need, and my mother’s condition has deteriorated without access to specialist support. There was a lack of communication or follow-up after the diagnosis, which made it difficult for us to know where to turn to, or how to access the care and support that we needed.  

Explain what you’d like the CCG to do.  

They have a strategic role locally, planning out local health services, so have the power to make planning or spending decisions that could expand or improve local specialist dementia support. What do you think could be better locally? We’ve provided some ideas below from our Only together report, so please use, add to, or change these as you’d like.  

  • Provide sufficient support and funding so that as a standard, families have a clinically trained professional as their single point of contact when specialist dementia support and advice is needed 
  • Ensure that all local families have information on dementia, including caring for someone with dementia, tailored to their needs and circumstances
  • Work locally and with Dementia UK to review local support for families affected by dementia, and identify ways to expand or improve services 
  • Help local GPs to provide Dementia UK’s resources and information leaflets to patients and families via virtual appointments, or at the surgery, memory clinic, or other health service. You can find further information about available resources here: www.dementiauk.org/get-support/diagnosis-and-next-steps/ 
  • Provide information to local GPs to ensure they are familiar with local relevant support services or charities for people affected by dementia or can signpost patients and their families to them. The Admiral Nurse Dementia Helpline on 0800 888 6678 or helpline@dementiauk.org can offer help and advice to both families and health professionals. The online Alzheimer’s Society’s Dementia Directory lists available local support services for people with dementia and carers 

For your information, Dementia UK is also contacting GPs to offer Dementia UK’s own support, information and services to improve the experiences of families affected by dementia. You can find out more about Dementia UK’s Only together campaign here: www.dementiauk.org/onlytogether 

I look forward to hearing from you.  

Yours sincerely,  

[NAME]  

[ADDRESS] [PHONE NUMBER] 

Let us know if you have written to your MP and/or CCG

Please do let us know if you decide to write to your MP or CCGs and if you receive a response. You can contact us via campaigns@dementiauk.org. 

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Share your experiences

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