As their dementia progresses, some people with a diagnosis will stop recognising people they know, even close family members. This can be upsetting for families. Attempts to remind the person who the people in front of them are can be confusing and frustrating for them.
But it is still important to keep these connections with the person with dementia, and to include and involve them wherever possible. Familiarity and support from the people who know them best will help them feel safe and comfortable; and occasional moments of recognition can make it all worthwhile.
Difficulty with recognising familiar people does not happen in all types of dementia; it is more common in Alzheimer’s disease, for instance, and rarer in vascular dementia.
For some people with dementia, the gradual loss of recent memories means the person may still remember you, but expect to see a younger person in front of them.
In others, the part of the brain that is responsible for recognising faces can become damaged. This is referred to as ‘proposagnosia’. If the person diagnosed with dementia is failing to recognise you or others for the first time, or seems distressed in your company, it is worth checking that there isn’t another reason for this, such as infection, medication changes, constipation etc. Some symptoms associated with dementia can be caused by other health problems, so always visit your GP if you are unsure.
Things to try when someone with dementia stops recognising you
In this video, our nurse has some useful tips for dealing with this, including using visual cues to help a person with dementia reconnect with you
Methods for prompting a person’s memory
Some people with dementia appear to ‘travel back in time’, reliving memories from when they were younger. They might expect grown up children to be small again, or expect their parents to still be alive, or even revert back in their mind to previous marriages or relationships.
There are cues you can use to help the person with dementia make the connections between the past and the present. The following tips may help to do this:
Put up photos around the house of important times you were together, such as weddings, birthdays, children’s parties
Show the progression of time in these photos, so that they show a spouse or partner when young, but also throughout time and how they are now
Keep a photo album on display with the photos clearly marked with people’s names, the year and the event, following the progression from the past to the present day
Wear clothes around the house that the person would associate with you; these could include a favourite item of clothing or styles from when you were both younger
Wear aftershave or perfume that the person associates with you. If they have a favourite perfume or aftershave, encourage its use; often the sense of smell can evoke positive memories when words cannot
Finding other ways to reconnect
It can be very difficult when someone with dementia stops recognising you. But there are things you can do to keep your connection with the person, and your relationship with them, warm and open.
If you can, try ‘entering into their world’, and asking the person diagnosed with dementia about the memories they mention. Encouraging them to talk about what feels familiar will help them to be at ease. Try not to remind the person with dementia of more recent realities that they are having trouble grasping, such as the death of their parents, as this can cause distress and confusion. Instead talk about happy memories and events that were important to them.
Taking part in activities together can be a good way to reconnect with a person with dementia. Anything you both enjoy can help you feel closer, such as:
Playing some familiar music
Watching a favourite film
Going for a walk and talking about the things you see on the way
Doing a jigsaw puzzle, if possible
Methods for communicating with someone with dementia
Keep yourself in the person’s eyeline, and try not to suddenly appear from the side or from behind
Speak clearly and in short sentences
If the person is struggling to recognise you, introduce yourself and tell them about the connection between you, for instance: “Hello mum, it’s Julie and I have little Danny, your grandson, with me.”
Be reassuring; look the person in the eye and smile
If a person with dementia is getting agitated, take yourself to another room for a few minutes before coming back in, calmly, and saying something like: “Hello, I’m back now, how lovely to see you.”
Try not to correct the person if they get your name wrong or say something that isn’t true; this can lead to distress and frustration on all sides. Try to imagine how the person with dementia is feeling
Remember, not being recognised does not mean you are totally forgotten.