If the person with a learning disability is diagnosed with dementia, the health professional should tell you:
what type of dementia they are thought to have
whether any treatment might be suitable
which other specialists the person will be referred to – eg a social worker, occupational therapist or psychiatrist
if there is any support for you and the person you care for
You can also speak to your local council or look online for information on support groups and services in your area, such as dementia specialist Admiral Nurse services or MacIntyre Memory Cafés for people with learning disabilities and dementia.
Help the person apply for lasting power of attorney (LPA), if they haven’t already. It will allow you and/or other nominated people to make important health, care and financial decisions if the person lacks the capacity to do so themselves
Work with the person to complete an Advanced Care Plan – a document setting out their wishes for future medical and social care
Request a Carer’s Assessment from your local authority to determine what support you need as a carer
Ask your GP surgery to register you as a carer so you receive support such as carer health checks and a free flu jab
See Sources of support, below, for more information on all of these.
To speak to a dementia specialist Admiral Nurse about learning disabilities and dementia, or any other aspect of dementia, please call our free Helpline on 0800 888 6678 (Monday-Friday 9am-9pm, Saturday and Sunday 9am-5pm, every day except 25th December) or email firstname.lastname@example.org.