Shared experiences of continuing healthcare

Stories from families affected by dementia helps us to build a better picture of how CHC works, or doesn’t work, in local areas. It also supports our engagement with national and local decision-makers so that we can push for improvements to CHC for families affected by dementia. We’re really grateful to everyone who has shared their experiences with us. Read some of the shared stories below:

Rachael and her grandfather, smile at the camera, both wearing Christmas hats

Rachael’s experiences of CHC

Rachael explains the difficulties the family has had in applying for CHC for her grandad.

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Mary and her mum

Mary’s story

I think the biggest issue I had with the CHC process was that it was so difficult to find my way around it.

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Rob and Pamela stand in a bluebell wood

Pamela's story

When we applied for NHS continuing healthcare (CHC), a package of care fully paid for by the NHS, the odds were stacked against us from the outset.

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Guiding the way

Our report, Guiding the way: a better continuing healthcare system for dementia, outlines the key challenges and obstacles faced by families affected by dementia when applying for CHC in England.

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Share your experiences of continuing healthcare

We would like to build up a better picture of how CHC works in local areas to help us in our engagement with national and local decision-makers.

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Together, we can ensure that every family affected by dementia receives the life-changing care they deserve.

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