Our campaigning work during the Coronavirus pandemic

Our campaigning work during the Coronavirus pandemic

‘One Dementia Voice’ calls for families to be allowed to visit relatives with dementia in care homes

Dementia UK, John’s Campaign, Innovations in Dementia, TIDE (Together in Dementia Everyday), YoungDementia UK, Alzheimer’s Society and Alzheimer’s Research UK, have come together as ‘One Dementia Voice’ to call on the Secretary of State for Health and Social Care and the Prime Minister to grant family carers safe access to care homes.

People with dementia have been hardest hit by the COVID-19 pandemic. Those in care homes have been disproportionately at risk of contracting and dying from COVID-19. The Admiral Nurses on our Helpline have been taking calls throughout lockdown from desperate relatives, unable to visit the person they love. Many have been unable to see or speak to their relative at all – not even by video call or through a window. This can be catastrophic for a person with dementia, for whom familiarity and routine are very important.

You can read our full letter to the Secretary of State here.

Access to essential food supplies

Many families affected by dementia have faced challenges accessing essential food supplies because of the need to self isolate or shield.

Dementia UK is working with the Department of Environment, Food and Rural Affairs (DEFRA), supermarkets and other charities to ensure that all vulnerable groups, including people affected by dementia, have access to the food supplies they need, or are better supported if they need to shop in-store.

The government has now published updated guidance on how to access essential food supplies which you can view here.

If you’re not able to go out to get supplies and if you are not able to get support from others, you are advised to either:

  • Contact your Local Authority who may be able to support you or signpost you to support. You can find your Local Authority here.
  • People who are vulnerable can also self-refer to the NHS Volunteer Scheme to get help with shopping and medication delivery. You can call 0808 196 3646 or visit this website.

If you continue to experience issues accessing food supplies then please do get in touch with us.

Access to testing and PPE

Improved and ongoing access to PPE and testing for care home residents and staff is crucial to ensure the safety of some of the most vulnerable members of our society. Dementia UK also strongly believe that families should have access to PPE to visit their relatives in care homes.  We wrote to the Secretary of State for Health and Social Care calling on the government to urgently and consistently address this issue.

Mental health and wellbeing

The pandemic has placed undue pressures on the mental health and wellbeing of people with dementia and family carers. Many unpaid carers are older and self-isolating and are having to undertake 24/7 caring responsibilities with little or no access to support or respite. We have written to both the Minister and Shadow Minister for Mental Health with our concerns.

Financial support for unpaid carers

Dementia UK joined 91 other charities calling for more financial support for unpaid carers. We signed an open letter to the Work and Pensions Secretary, Rt Hon Therese Coffey MP, and Chancellor, Rt Hon Rishi Sunak MP highlighting the financial impact that COVID-19 has had on family carers and urgently calling for an increase in Carer’s Allowance.

Care and Support Alliance

Many families are struggling in their caring roles with little or no social care support. This is of great concern to us and we are working as part of the Care and Support Alliance to ensure that families are able to access the care that they so urgently need during the pandemic.