Personal stories, children young onset dementia

Stories of children and friends

Read the personal stories of children whose parents are living with young onset dementia, and the friends of people affected.

They share in their own words the impact their parent’s condition has had on them and the lives of those around them.

Jessica's story

Jessica’s father’s family has been devastated by familial Alzheimer’s disease. Her dad first showed symptoms aged 41 and in her 20s, she took the brave decision to undergo genetic tests to determine whether or not she carries the gene. She shares her life-changing experience

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Will and his family

Will's story

Will’s mum died aged 58 after many years living with young onset behavioural variant frontotemporal dementia (bvFTD). Will shares the impact her dementia had on his life and how he has started to move on in the years since her death

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Joanna, Josh and Richard on holiday in Switzerland in Spring 2002

Josh's story

Josh is 26 years old and works in financial services. He talks about his experiences with the diagnosis of young onset dementia in his mum, Joanna, and the subsequent support he has provided to his dad

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Meghan and mum Caroline

Meghan story

Meghan’s 60 year old mum Caroline was diagnosed with young onset Alzheimer’s disease in 2015.  Meghan describes the pain of being 24 years old and loving and missing her mum at the same time 

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Catherine coffee

Catherine's story

Catherine’s best friend Annie’s husband was diagnosed with dementia aged 51. Catherine shares her advice on how you can support a friend in Annie’s situation and help them to continue to live a life beyond dementia

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Share your story

If you have young onset dementia, or you support someone who is living with the condition, and would like to share your story – do get in touch 

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Personal stories

Read the stories of people living with young onset dementia, family members and friends

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